CPHIN operates under four principles in regards to data privacy: (1) we can learn from data without risking patient privacy, (2) data will remain in its identifiable state at its source, (3) data will be anonymized and aggregated through the Kick Start Program platforms, and (4) CPHIN’s Board will develop a data governance plan based on international privacy and security standards.
CPHIN takes data privacy very seriously and will adopt a Privacy by Design approach and undertake privacy risk management activities, such as establishing a governance framework; ensuring proper legal analysis; enabling privacy awareness training and consent management as applicable; privacy preserving data mining; alerts; incident response; and security risk management activities.
CPHIN has partnered with the following privacy advisors:
– Dr. Ann Cavoukian, Board Member of the Global Privacy and Security by Design Centre
– Dr. Khaled El Emam, founder of Privacy Analytics Inc and Senior Scientist at the Children’s Hospital of Eastern Ontario (CHEO) Research Institute
– Carole Piovesan, co-founder and partner of INQ Data Law and advisor to the Ministry of Innovation, Science and Economic Development
– Mary Jane Dykeman, co-founder and partner of INQ Data Law